One Sweet Journey

The last of Mom’s ashes scattered in Long Island Sound.

Two weeks ago Bill and I went up to Long Island, to scatter my mother’s ashes. I worried about the trip for weeks ahead of time, waking every morning with the same questions.  “Am I doing the right thing and why?  Will releasing her in this way really bring me peace and healing?”  And there were the two questions that I can never seem to leave behind:  “Am I a nut case and what will other people think of me for doing this? “

Every morning that I woke to these questions I’d answer them with a few more questions, “I don’t know and what does it matter?  I feel called to honor Mom in this way. So what if I am a tad crazy and what does it matter what anyone else thinks? “

The day I began the letting go it was chilly and blustery with rain showers off and on. We found the vacant lot in the town of Patchogue, where her house once stood when she was a just a teen.  Around the corner was the high school that she attended, and ten or so miles away we were shown the gravesite where her mother and father are buried. We also found the house that my dad bought for her after we all moved to Vermont in 1960.  She hated the long dark New England winters and when she couldn’t take the North Country any more, she’d escape to the more comfortable world of Long Island. I left a bit of her in all of those places.

The next day, we visited a beach on the north shore of the Island, where Mom often took my brothers and me to gather fresh clams for eating on the half-shell, for steaming and for her delicious chowder. My favorites were steamed long neck clams dunked in melted butter, strongly flavored with fresh garlic.

Above that beach still sits the pavilion where I’d occasionally attend parties with my parents. A square dance caller would move the adults about the wooden floor, while us kids gathered lightning bugs, played tag under the stars, and ran in and out of the pavilion for frosty bottles of soda pop, chips and slices of sweet, pink watermelon. Seedless melons hadn’t yet been invented and we’d spit the numerous seeds out of our mouths, trying to be the one who could spit them the farthest.

After lunch in Northport, where I graduated from high school, we enjoyed a treat at the soda fountain where I used to hang out as a kid.  It’s still owned by the same family that opened the business in 1929.  I swear the stools at the counter are the same ones I sat on when I lived not far from there over fifty years ago. Bill ordered a Black and White Malt and in honor of Mom, I chose homemade lemon custard ice cream, drizzled with hot fudge sauce, which was Mom’s favorite treat.  I have to agree it’s one of the best, especially when the person who dishes it out for you, makes the ice cream themselves.

Our last stop was out on Eaton’s Neck where we lived for about five years before moving to New England.  I scattered the last of her ashes in front of the house we lived in, at the tiny public beach nearby, and directly into Long Island Sound. As the last ashes blew into the salt water where I used to spend my summers, I felt a deep sense of satisfaction and release from parts of my life that were happy but also extremely painful.

I felt lighter and taller, having let go of a heavy burden I had been hauling around with me for years. Mom and I had a deep love/hate relationship, especially at the end of her life.  As I visited the places where she grew up and spent both sad and happy times, I felt an intimacy with her that I haven’t often felt. Her own upbringing had been abusive and I never would have been able to reach the understanding and forgiveness I felt that day, for both of us, had I provided her with a traditional burial.

Amongst the revisiting of place, I also had the opportunity to reunite with two cousins that I haven’t seen in fifty years.  When I was just a little kid, they were my favorite people in the whole world.  While Joanne is five months older than I am, Mary Anne is five years older. I always felt in awe of them and loved being with them. Though we’ve kept in touch via Christmas cards over the years, it hasn’t been enough to keep us in each other’s lives. Being with them was extra special medicine for me and I have no intention of allowing time to pass us by again.

At the end of our Long Island sojourn, Bill and I spent three nights in New York City. We saw several shows and a few movies besides visiting the church where my grandparents on my dad’s side were married and where I was christened. We also visited the addresses of where my dad once lived and where his father opened his cabinet shop a century ago.  There were no signs that they had ever walked those streets, but it was easy for me to imagine the horse-dawn carts and the narrower streets that have been replaced by our mad, contemporary world.

So here I am back at home in Virginia.  Those nagging, early morning questions don’t haunt me every morning as they did  just a few weeks ago.  They’ve been replaced with deep gratitude for the gift of the journey I’ve been privileged to go on and the sweet love of family that never dies. I may be a tad crazy, but to my knowledge, no one really cares.  They all have their own craziness to deal with and it’s what makes all of us humans one big nutty family. I hope your journey is as filled with love as mine has been.

Reid’s Barn, A Hint Of What’s To Come

The front of Reid’s barn, June, 2012. Photo by W.H. Rough

I often mention that I’m working on a memoir when I publish a post here.  I’ve been thinking that it’s time to share a little bit of what I’ve been working on.  The following piece will most likely be included in the final manuscript along with other stories about my brother, Reid and my family.

Reid, in 2006.

It’s a hot and sticky July night. The clock on the nightstand reads 2:15.  I get up to use the bathroom.  Five minutes later, back in bed, I’m more awake than I want to be. I can’t get comfortable and the sleepy, middle-of-the-night brain fog that usually pulls me back into deep sleep is nowhere to be found.  I search my mind, trying to uncover what I’m worried about so that I can tell it to get lost and that I’ll deal with it in the morning. But nothing rises to the surface. I close my eyes, breathe deeply, and pray for sleep to return.

A few minutes later, the deep rumbling of a truck outside on the street, gets my attention.  Our neighborhood, though only blocks from a major road and the University, is always extremely quiet. It’s not a place you’d normally find a big truck beeping it’s way up or down the street during the wee hours.  It’s not trash day and besides, they make their rounds during daylight hours.

When I open my eyes, I’m instantly aware of flashing red lights reflected on the ceiling, giving the room a surreal look. Anxiety begins to flood my core.  I always have an eye or an ear out for danger and am ever more on the alert since I live across the street from a frail, elderly gentleman, in his nineties. I can’t help myself.  I seem to be wired for worry.

Bill stirs. Opening the shutters, we see no activity, except for the disturbing sight of a fire truck parked in front of the house next-door. Its swirling red lights sweep through the night. Several firemen, dressed in full firefighting gear, emerge from the dark, get back in the truck and drive off.  Whatever the emergency was, it’s over.  I go back to bed falling into a restless sleep.

The next morning a call from my neighbors, away for the summer, explains the fire truck mystery. Their security company notified them in the middle of the night that their fire alarm had gone off and that the fire department was on its way to check it out. They found nothing. The alarm had apparently malfunctioned. George tells me the problem will be fixed in the next couple of days and sends apologies for waking up the neighborhood.

Later in the morning, checking my email and Facebook page, I stumble across an alarming post from my nephew’s former wife, and gather that there has been a fire at her ex’s home, but that everyone is okay. That would be the house that my brother, Reid, built and considered home when he was alive.  I try calling Jesse, my nephew, who lives there now, but no one answers the phone. I try to rest in the knowledge that everyone is supposed to be okay.

Jesse finally answers the phone at 9 PM.  Blessedly everyone is fine and the house was never in danger of catching fire. But the story he tells me is hair-raising. It seems that around 2:30 that morning, just about the time Bill and I were up and watching the fire truck outside our window here in Virginia, a thunderstorm went through the area of New Hampshire where he and his new wife are located. The big barn, I always referred to as Reid’s barn, was struck by lightning. Fifteen minutes later, when the fire department arrived to contain the blaze, the barn was fully engulfed in flames.  All that is left is a large, charred patch of ground and a hole, where the barn once stood.  That the fire department was checking for a fire next door to my own home, at the same time that Reid’s barn was burning sent a chill down my spine.

My grandfather’s workbench hidden beneath piles of Reid’s stuff. Photo by W.H. Rough.

Because there was little to no storage space in the house, Jesse and his new wife, Lisa, had stored most, if not all of their belongings in the barn, including clothing, family photographs, books and Jesse’s extensive collection of vinyl records.  All of it was lost, along with the remains of Reid’s things, his art work, several 12 string guitars, some clothing and the carpenter’s workbench our grandfather had built when he came to this country from Poland in 1912.  Lisa and Jesse had just begun putting the finishing touches on several horse stalls on the ground floor for her horses that were due to arrive the following weekend.  Thank goodness they were not yet stabled there.  They would have most likely perished in the fire. Both Lisa and Jesse, feel sad, but that no one was hurt makes all of us feel better and fortunately, the barn and its contents had been insured.

I don’t know when that barn was built, but it was a fixture on the property when Reid bought the place over twenty years ago.  After he built the house and his second wife died, he moved into the barn so that he could rent out the house to bring in some income.  It was there that he lived until 2008, when he was diagnosed with Esophageal Cancer.  He then moved in with his lover, Lee, who took care of him until he died in June of 2010.

Prior to that, on my occasional visits to New England, Reid never invited me into the barn to see where he was living.  Bill had managed an invitation once when he was visiting there alone. He told me that the place was a mess. He described the barn as filled to the rafters with all manner of junk from scrap metal to cork floats that Reid had collected. There was very little room to move about because the stacks of lumber, tools and whatever Reid took a fancy to, just kept piling up. A number of old, dead Volvos were parked in the field next to the barn from which Reid removed parts to keep his ancient, Volvo sedan on the road.  Reid was a hoarder.

He lived in a quasi apartment he put together on the top-level in the barn. There was no running water. A wood stove tucked away in a corner kept the top floor, his living space, warm in the winter.  But in order to get up there, one had to make his way through unmarked passages, past piles of junk and then up a ladder.  After hearing this, my mother, who was by that time living with Bill and I, complained of repetitive nightmares in which the barn caught fire and Reid was unable to escape.

The first time I was ever inside the barn was just a few months ago on a visit I made to Vermont and New Hampshire. I’d last been up there in 2010, for the memorial celebration after Reid died. I’d been planning to make another trip to New England for over a year after that, but all kinds of excuses would present themselves and I’d sigh with relief that I didn’t have to do it just yet.  I apparently wasn’t ready to revisit my past life in Vermont, which was loaded with issues that I knew one day I’d need to address. As I began slowly writing and examining stories about my life for my memoir, I felt I needed to go, but lacked the courage to move forward until this year. Reid’s life and death were among the major items on my list that I needed to revisit.

During his last months, when Reid was very sick, but trying to make the most of his remaining life, Bill and I were moving into a new home.  I was dealing with severe anxiety and depression. Just a year earlier I had discontinued taking Paxil, and was still struggling with the effects of withdrawal. My deep sleep patterns had ended when I began weaning myself off the drug and I had been sleeping for only three hours a night, for almost a year. I was also seeing a therapist who was helping me explore the trauma I’d experienced as a child.  That I was losing my brother, with whom I’d had a deep love/hate relationship, didn’t help.

I was unable to be with him when he died.  The rushed, two-day trip Bill and I made to New Hampshire to celebrate his life was too short a time in which to wrap my head around the fact that I would never see him again.  Between bouts of tears, I walked my way through those two days feeling numb and unable to digest what was happening.  At home again, I blindly dove into each day, getting settled into my new home, and planning my first trip alone in years. Two months later my diagnosis of endometrial cancer sent me reeling.  I had set aside no time to mourn the loss of my brother or to connect with the deep compassion I had once felt for him, but was unable to express during the last year of his life.

Walking into the barn this past June, I was struck with all that I hadn’t known about him. For the first time, I accepted that Reid was a hoarder. Though Family members and friends had repeatedly told me about the way he was living, I couldn’t take it in until I saw it with my own eyes. Though Jesse had already begun getting rid of what Reid had collected, it was impossible not to feel Reid’s presence. I felt as though he had just gone out to do a few chores. There were notes he had left for himself on scraps of wood left over from his various woodworking projects. Lists of things he needed to buy on his next trip to town, to-do lists, and a list of friends and their phone numbers, that he needed to call.  On one shelf sat an unopened jar of mayonnaise, which over the two years since his death, had separated into two parts, a small glob of white solid matter, submerged in a pool of thick yellow oil.  His clothes still hung in a makeshift closet. A collection of tiny rodent bones and arrowheads he had found nearby were displayed in small baskets.  Pieces of his artwork and the whimsical birdcages he built were hung from the walls and rafters.  I was overwhelmed.

After leaving the next day on the next leg of my journey, I realized I had taken no photos of what I saw in the barn and had neglected to take a small memento. I had planned on taking one of his lists written in his big, bold handwriting, feeling that if I kept it in a pocket, I’d be able to connect with him, because for the first time, I understood who he was.

Though my visit to Reid’s barn helped my grieving process, I still find it difficult to comprehend that my brother, Zed, and I are the only remaining members of our family.  It was a family larger than life in so many ways.  The hurt and pain we caused each other has followed me through the years, scars that never completely fade.  The barn is gone, as is Reid and both of my parents, yet I continue searching for the love our family so rarely offered each other. Sometimes I feel terribly alone, wandering through the scene of a crime I will never understand.

I am convinced that the burning of the barn was not just an accidental act of Mother Nature. To me it is more than coincidence that on the exact night, at the exact time that the barn burned to the ground, a fire truck drove its way into my sleep. Within the flashing red lights, I can see Reid, in full rage, casting bolts of lightning with his hammer, breaking the shackles that bound him to his earthly existence. He is now at peace and has also freed me from the myths we created together as we grew into our lives.

Writing My Life

At five, standing in my grandparent’s garden.

When I told a friend a while back that I’m in the process of writing a memoir, she asked me what it was going to write about. I struggled with what to tell her. I wasn’t very clear yet myself, but trying to find words that I thought would serve the purpose, I said, “Well, it’s about my life, how I came to be diagnosed with Post Traumatic Stress Disorder and how I’ve brought peace into my life.”

Sufficing as a fair to middling, but far too general a description, it didn’t answer the deeper questions that had been rolling around in my head when I started the writing. “What am I going to include?  What do I want to say and why do I even want to do this?  Am I up to the challenge of reliving some of the darker moments of my life?”

In my first conversations with myself about writing my life, I didn’t have a clue as to how to start.  So I started with stories as they came to me. I published some here, on this blog.  I wrote the happy stories, avoiding the dark stuff, not ready to spill the beans and their big stink. Slowly, I started allowing the ghosts waiting outside the door into my studio and began digging deeper, becoming more honest with and about myself.

Many have told me that I’ve lived a fascinating life and should get it all down on paper. They told me it would be helpful to others who’ve suffered through undiagnosed PTSD. Many people don’t understand that it can be caused by lesser events than living through a tsunami or being a veteran of a cruel and arduous war.

But my first concern was just getting it all out of my internal storeroom, knowing that once I started getting my shame out, I’d feel lighter and happier. I could downsize my memory bank, just as I was downsizing my belongings and living space. I felt that writing through my struggles, I could begin to put the fragmented pieces of my life back together, reaching a new understanding of who I am and how I got to be me.  I knew it could open up the doors I’ve kept locked for far too long and giving me a new perspective on where I’ve come from.

As I was trying to get started on this project, I was diagnosed with Endometrial cancer, which grows in the lining of the Uterus. I was told by a number of doctors that if one has to have cancer, this is the best kind to have. It’s easily treated, depending of course, on its stage when it’s discovered.  Even so, I was extremely frightened. Cancer is the killer in my family. Heart disease has rarely been an issue. All of my relatives, who have passed on, died of complications and the affects cancer had on their bodies. We’ve had cancer of the lungs, bladder, esophagus, nasal cavity, and colorectal cancer.  I found it disturbing to think that unless I’m run over by a dump truck or die of some other external cause, my life would most probably end in the same kind of suffering that my forebears in death went through.  I did not want that for myself.

Treatment for my cancer was a simple hysterectomy, removing all of my reproductive organs. As long as it would be gone, I didn’t care about the loss of parts of myself. At my age, I wouldn’t be needing them anyway. I now visit my Oncologist twice a year to be rechecked and to date there has been no reoccurrence. I’m told that the chances of it returning are rare and should it show up again it is treatable.

While spending several months recuperating from the surgery, I decided that there was no time to worry about cancer and its potential return.  I had no time to feel sorry for myself or the events in my life that had brought me to this moment. I wanted a new a perspective on how to proceed through the rest of my days. Life has been hard and cruel at times and I still bear the scars of child abuse. I’ve struggled with depression, extreme anxiety and spent years thinking of myself as broken and unfit. I learned about and began to accept that I’m an HSP, or a highly sensitive person. Whatever the cause, whether genetic or learned over time, I am an introvert, who has continuously tried to be the extrovert that I thought everyone expected me to be.  I was constantly at war with myself, feeling unworthy of the good things in my life, wondering what was wrong with me, and why I couldn’t reach my unthinkable dream of being just like everyone else.  In a word, Normal.

My cancer has given me a second chance at life. With the help of a therapist whose specialty was treating trauma, I had already begun the journey.  There was much healing to be done, both from the surgical standpoint and from years of blaming, hating, and abusing myself, because I was different and didn’t seem to fit in anywhere.

I can say with confidence that the most effective part of the healing process has been my memoir writing and allowing myself to relive certain aspects of life.  It has been difficult, but I’ve also discovered the many joyful times I spent with my parents, who unable to cope with their own lives, abused me and my brothers.  I’m learning about forgiveness. I’m learning to love myself and that I am worthy, and a good person.

I’m still at work on my memoir and cannot say how long it will take me to finish it. I need time to navigate through my memories and often need to take breaks between the intense chapters in order to reground myself. Being able to laugh at myself and to be joyful about my newest perceptions is constantly rewarding me.  When I’m finished writing my life and it hopefully becomes a book, I will be most happy if those who read my words will find within them, peace and a new perspective on suffering.

Are you writing a memoir or keeping a journal?  Are you finding it easy or difficult to write your stories?  Do you feel that writing about your life is an opportunity to heal the most painful parts of your journey? 

Kickin’ Granny Out Of Her Chair

My Cross Trainer, Zelda. I bought her second hand five years ago and she’s saved me a fortune in fitness membership fees. I spend time with her when the weather is too hot, too cold, raining heavily or snowing. I have no excuses if I can’t get to the gym.

I’ve been noticing an increase in my aches and pains as summer has progressed.  One reason might be that I move less in the summertime.  I can’t stand the heat and humidity and have much less energy during July and August, when I typically spend more time sitting around and complaining about the weather, than I do moving.  My favorite place to be is outdoors, but the hottest months find me inside my air-conditioned home.  And though I’m grateful to have it, I feel guilty using it because it uses too many natural resources. I always feel much better physically and emotionally in the great outdoors, than I do when I spend my time in an artificially cooled environment, but when it’s really hot, I need it.

Another reason for my sore shoulders, creaky back and stiff hips might be that I’m getting older.  I’ll be seventy in November.  I hear from other aging people, including a few health care providers, that aches and pains are just a sign of  old age.  “Get used to it,” they  tell me. “It’s the way it’s going to be from now on.”  Others, who are older and more active than I am, tell me, “The more you move, the better you feel.”

I personally believe in the “the more, the better” theory, as in, “Use it or lose it.”  I  know that I can work through many of my aches and pains by walking, swimming or using my cross trainer on a regular basis.  And I know that if I spend too much time sitting around, I feel stiffer and in more pain.

I’ve also been told by my massage therapist and my Pilates teacher that my pain could be connected to old trauma that I’m working through as I write my memoir. They both know I’ve been struggling through some aspects of the writing and if I tell them I’m in pain, they’ll ask me what I’m writing about. Nine times out of ten, it is usually something terribly dark. When I’m working through those difficult passages my back and hip pain does seem to get worse.  I push through it, however, hoping that once I’ve finished the writing, I’ll be feeling much better.  In the meantime, I’m taking breaks from writing every hour or so to stretch the tension out of my body. It really helps.

I very much dislike the image that often appears in my head when I put the words, grandmother and aging together.  In the picture, I see an old white-haired lady, sitting in a rocking chair, on her front porch, watching the rest of the world go by.  That is not what I want for myself so I’m going to do my very best to make my last days anything but that.

I’m kickin’ myself out of my chair.  There will be no rocker for me.  There will be more stretching, which I’ve let go a bit over the summer because I wasn’t losing my “winter belly” fast enough.  I spent way too much time worried about my image in the mirror, rather than paying attention to what my body was trying to tell me.  All those times she yelling, “Stretch,” I wasn’t listening.

To make sure that all is well, I’ve recently had my yearly physical, a mammogram, a bone scan and had my teeth cleaned.  No cavities!  I met with my Oncologist last week and she once again declared that I am cancer free. I had my eyes checked as well and they are fine.  My glasses need only a tiny tweak, so I’ll  keep using the old ones till I can’t see anymore.  I’m happy and feeling great emotionally. Getting my story down on paper has been healing for me and sometimes I wish I’d been ready to do it a long time ago.

To stay as healthy as I can, my plan is to continue my exercise routine, but ramp it up a bit.  Gentle Yoga twice a week. Pilates once a week.  In between I walk what I call the “Big Hill” as often as I can and use my cross trainer, when the weather is too hot or nasty. I’ve just gotten myself a membership at one of the city’s pools and hope to add a swim session at least twice a week.  I’ll try one of their water aerobics classes to start.

I think I’ve lost most of my winter belly, now that fall is on it’s way, but intend to be more mindful about the amount food I’m ingesting.  And it’s time to think about foods that don’t make me feel so good. I very much enjoy a mostly plant-based diet, have recently cut out most of the dairy I was consuming and have now decided to go gluten-free.

I just finished reading, Wheat Belly, by William Davis, MD, and found it mind-blowing. We need to get used to the idea that over time, through hybridizing, we’ve come up with a new kind of wheat that is not good for us.  It may be more drought resistant and produce more grain per acre, but our bodies are telling many of us that they don’t like it.  Several people I know who have stopped consuming wheat have told me that their aches and pains are gone. Many also claim an almost instant loss in weight, which sounds great.  Two days ago I jumped off the cliff. I haven’t had gluten in three days and I’m feeling terrific.  My energy levels have been good and my back pain is  gone … at least for the moment.  I’m convinced I need to leave wheat behind.

Sugar has always been my worst enemy, but I seem to have it under control at the moment.  If I need to sweeten something I’ll use a natural product like raw honey or maple syrup. They’re still sugar, but at least they aren’t highly processed. I do not like stevia, which for some does the trick. I’m not sure I’ll ever be able to give sugar up entirely, but at this moment I seem to be handling using less well.

I do not consider that I am on a diet.  I simply know that leaving some foods off the table and out of my belly, makes me feel a lot better.  I am overweight and losing some of that fat stored around my belly would be a good thing.

My biggest inspiration is my daughter, Lisa, who through diet change and exercise, has lost a huge amount of weight and recently finished her first Triathlon. She’s now an assistant running coach at her daughter’s (Zoe) school. And she will be leading The Wild Woman’s Wellness Tribe, next spring. Click here for more information.

My other inspiration is a woman I heard about while visiting Yellowstone National Park one winter. In her mid-eighties, she went snowshoeing every winter morning, as she had most of her life.  One morning she didn’t return.  Her family found her out on the trail, laying in the snow, with a smile on her face.  She died moving and engaged in something that she’d enjoyed doing all of her life.  That sounds like a pretty good way to go if you ask me!

I’ll likely slip and slide along the way, cheating from time to time. I’m in no way perfect and when I walk by Ben and Jerry’s, I may just have to stop by occasionally for one of my favorite treats:  Peanut Butter-Banana Frozen Greek Yogurt.  It can’t hurt once in a while, as long as I keep moderation in mind.

Saying It Out Loud

“Seeing,” from my Artist’s Journal

I’ve written a guest post on my daughter’s blog, Sacred Circle.  It’s about my way of making  my intentions known, my Artist’s Journal, and the summer writing camp I’ve been attending.

I hope you enjoy!